There was a mistake in my medical file from my doctor in Florida. Instead of having Celiac in the condition/diagnosis area of my chart, it was put only in the notes. This means that the tests that I took two years ago have to be completely repeated. For me personally that means eating five weeks of gluten. I decided to turn this into a science experiment of one. This is a way to test the reaction to gluten on a known celiac sufferer. I have started keeping track of my gluten intake as well as reaction times and the type of reactions. Below is the diary of what has occurred so far.
Gluten intake 1/4 a pita, 4 breaded mushrooms.
Reaction time: Under 10 minutes
Reaction: included vomiting, sweating, and long lasting loose stool.
Gluten intake: 1 McDonalds Big Mac
Reaction time: 37 minutes
Reaction: Loose stool and fatigue.
Day three: (NOTE) Joint pain and fatigue before eating any gluten.
Gluten intake: 1/3 flour tortilla.
Reaction time 17 minutes
Reaction: Stomach pains, loose stool, fatigue, pine cone feeling in the intestines and the re-emergence of an ulcer. (I can’t prove that without tests, but pointed pain in a specific area of the stomach.)
Day four: Gluten intake 1 flour tortilla Reaction time 14 minutes, reaction Loose stool, pine cone feeling in the intestines, joint pain, fatigue, irritability, and lack of desire for any activity.
Day five: Gluten intake, various Chinese foods (in small amounts each)
Reaction time: 18 minutes
Reaction: Vomiting, Loose stool, joint pain, sweating, irritability, lack of desire or motivation, pine cone feeling, irritation of ulcer, itchy skin.
This is all I have so far. I am well below the three meals a day that is required for the testing they are going to perform. At this rate I am not sure I will be able to get up to the amount of gluten that they need. I have been gluten free for more than two years now and I get sick off of even cross contamination. Having three gluten meals a day may not be possible for me.
Constants for me now are joint pain, intestinal pain, ulcer pain, and itchy skin. These are occurring no matter when I eat the gluten for the day. I will also keep track of how long it takes for these feelings to abate once I have finished with my “gluten Binge” as the doctor called it.
I am open to ideas of foods to eat. Is there any specific item you would like to know the reaction time and type to? Please let me know!