Being diagnosed with anything life changing can have large emotional
impact. It doesn't have to be death or a terminal illness to have a
response just because there is not a deathly outcome doesn't mean that if does
not affect ones emotions. Going through the five stages of grief can just
be the start of handling the situation. Even situations that have been
resolved can have this sort of impact.
When I was diagnosed with Celiac and with infertility and told of the loss
and/or imminent loss of my pregnancies I went through these stages. I also went
through this when I was told that I had cancer but it was removed and now I am
cured. During these periods I was lucky enough to have people around me
that understood and tried to help, that still didn't make the news any less
devastating.
The five stages of grief are
Note: There is no right way to grieve and it may take some longer than
others. These steps may not be in order or may be repeated. This
is only an overview of what can happen not what does happen.
1. Denial and Isolation:
This has been called a defense mechanism that buffers the immediate
shock. That thought that the doctor cannot do their job right and has
made a large mistake. Simply a person cannot handle the situation and
hides from what is going on. Some of these thoughts for me included
"I just need to find someone who knows what they are doing." "There
was a mistake in the blood work" or my favorite "who gave this idiot
a medical degree?" This is a temporary response that carries us through
the first wave of pain.

2. Anger
Once denial starts to wear and reality re-emerges a person can go through
anger. This anger can come out at unreasonable times and be aimed at friends, loved
ones, animals, inanimate objects, doctors or complete strangers. This
emotion is created to help deflect the pain. Inside we know that the
anger is misplaced, this can cause guilt at being angry which then turns to
more anger. In my case the anger came out at close friends, family and
inanimate objects. Not that I didn't blow up at complete strangers it was just
less. I remember throwing a book I was reading since the characters were
doing what I could not. It took me a few weeks before I could read the
book again without wanting to destroy it. I accused those close to me of
not understanding or not caring.
3. Bargaining
This is a way to try to regain control of the situation. It can come
with thoughts of why didn't I make a bigger deal of those symptoms, why did I
trust only one doctor. These “what if” thoughts can often lead back to
anger, as they consistently did for me. I tried making deals with a
higher power in order to be able to keep the baby, have a child, or just be
healthy and able to eat normally. This is almost a second form of denial
in the way it is trying to protect ourselves from reality. Once I found
that I couldn't do anything different I would then get angry. I
personally was stuck in these two stages for a while on a couple of different
issues.
4. Depression
This can happen in a few different ways, it can be sadness and regret that
lead us to separate ourselves from our loved ones and from normal
activities. This is the type I generally go through. I would lock
myself away in my room and fall into fantasy worlds where I didn't have to deal
with anything. I would put myself in front of the computer and hide in
Facebook games, stupid things with no real bearing on anything real.
There is a second type of depression that is quieter, those people that look
and act fine but haven't cried openly. Those that keep going to work and
seem to handle everything fine, this can sometimes be the more dangerous of the
depression since it can last a lot longer and perpetuate it's self. Thoughts
like "why doesn't anyone notice how I real feel?" can occur, if this
is the case please try to talk to someone. In both cases sometimes
a hug can really help. It is not a permanent fix but it can be useful to
help a little of the depression not feel so lonely, even if you made the
loneliness yourself.
5. Acceptance
This is the hardest stage to reach, and often you can be stuck in one of the
other stages for a very long time. This stage is shown by calm and
withdrawal as you deal. This is not happiness and often can be mistaken
as still being in the depression state. It is only after this stage that
you can start to real deal with everything that has happened. I am only
now just starting to get to this stage after my ectopic pregnancy. I was
stuck in anger and depression for a long time. I would start into
acceptance and then fight against it. Coping with any large change like a
diagnosis can be hard, and no one can really understand what you are going
through since each person deals differently. The only advice I can give
is hypocritical since I don't follow it, that advice is to allow grief to take its
course, try not to fight it. However, I personally know how hard if not
impossible that advice can be.
With my celiac and immunoglobulin A deficiency it took me a few weeks to
come to grips with everything. The depression stage was short but I real
held on to the anger. Why me and why not others, what did I do wrong? Those
thoughts kept me angry since I didn't want to deal, I just wanted it to go
away. I went through many tests and kept hoping that each test would say
that the others had made a mistake and I was fine. However, when I was
found to be IGA-D (immunoglobulin A deficient) that was all diagnosis the
doctors really needed. Further testing was to see how far along I had
progressed not to prove that I had Celiac.
Knowing what the stages of Grief are doesn't make it any easier to deal with. Never let anyone tell you that you cannot be going through those stages simply because they don't think you should.